[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[S. 3757 Reported in Senate (RS)]
<DOC>
Calendar No. 429
118th CONGRESS
2d Session
S. 3757
To reauthorize the congenital heart disease research, surveillance, and
awareness program of the Centers for Disease Control and Prevention,
and for other purposes.
_______________________________________________________________________
IN THE SENATE OF THE UNITED STATES
February 7, 2024
Mr. Durbin (for himself, Mr. Young, Mr. Casey, Ms. Smith, and Mrs.
Gillibrand) introduced the following bill; which was read twice and
referred to the Committee on Health, Education, Labor, and Pensions
June 18, 2024
Reported by Mr. Sanders, with an amendment
[Strike out all after the enacting clause and insert the part printed
in italic]
_______________________________________________________________________
A BILL
To reauthorize the congenital heart disease research, surveillance, and
awareness program of the Centers for Disease Control and Prevention,
and for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
<DELETED>SECTION 1. SHORT TITLE.</DELETED>
<DELETED> This Act may be cited as the ``Congenital Heart Futures
Reauthorization Act of 2024''.</DELETED>
<DELETED>SEC. 2. NATIONAL CONGENITAL HEART DISEASE RESEARCH,
SURVEILLANCE, AND AWARENESS.</DELETED>
<DELETED> Section 399V-2 of the Public Health Service Act (42 U.S.C.
280g-13) is amended--</DELETED>
<DELETED> (1) by redesignating subsections (f) and (g) as
subsections (h) and (i), respectively;</DELETED>
<DELETED> (2) by inserting after subsection (e) the
following:</DELETED>
<DELETED> ``(f) Stakeholder Workshop.--</DELETED>
<DELETED> ``(1) In general.--Not later than 1 year after the
date of enactment of the Congenital Heart Futures
Reauthorization Act of 2024, the Secretary shall convene a
workshop composed of subject matter experts, on adult patients
living with congenital heart disease, to--</DELETED>
<DELETED> ``(A) identify research gaps and
opportunities related to the lifelong needs of
congenital heart disease patients, including long-term
health outcomes, quality of life, mental health, and
health care utilization;</DELETED>
<DELETED> ``(B) assess the workforce capacity in the
United States of health care providers who treat adult
patients living with congenital heart disease, and
options to address any such shortages in such
workforce, which may include strategies to expand
fellowship training programs and support regional care
centers; and</DELETED>
<DELETED> ``(C) foster collaboration and
dissemination of information across Federal agencies,
health care providers, researchers, and patient
organizations.</DELETED>
<DELETED> ``(2) Composition.--The workshop described in
paragraph (1) shall be led by the Secretary, and shall involve
participants that include, as appropriate, stakeholders
representing patient organizations, health care professionals,
research entities, health insurance providers, accrediting
organizations, and relevant Federal agencies, including the
Centers for Disease Control and Prevention, the National
Institutes of Health, and the Health Resources and Services
Administration.</DELETED>
<DELETED> ``(g) Report.--Not later than 3 years after the date of
enactment of the Congenital Heart Futures Reauthorization Act of 2024,
the Secretary shall issue a report to the Committee on Health,
Education, Labor, and Pensions of the Senate and the Committee on
Energy and Commerce of the House of Representatives on findings and
recommendations of the Secretary with respect to strategies to advance
research related to the lifelong needs of congenital heart disease
patients and address workforce shortages of providers for adult
patients living with congenital heart disease, and, as appropriate,
progress made by the Secretary to implement such strategies and a plan
for implementing such recommendations.''; and</DELETED>
<DELETED> (3) in subsection (i), as so redesignated, by
striking ``2020 through 2024'' and inserting ``2025 through
2029''.</DELETED>
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Congenital Heart Futures
Reauthorization Act of 2024''.
SEC. 2. NATIONAL CONGENITAL HEART DISEASE RESEARCH, SURVEILLANCE, AND
AWARENESS.
Section 399V-2 of the Public Health Service Act (42 U.S.C. 280g-13)
is amended--
(1) by redesignating subsections (f) and (g) as subsections
(h) and (i), respectively;
(2) by inserting after subsection (e) the following:
``(f) Stakeholder Workshop.--
``(1) In general.--Not later than 1 year after the date of
enactment of the Congenital Heart Futures Reauthorization Act
of 2024, the Secretary shall convene a workshop on congenital
heart disease, to--
``(A) identify research gaps and opportunities
related to the needs of adults with congenital heart
disease, including with respect to long-term health
outcomes, quality of life, mental health, and health
care utilization;
``(B) assess the workforce capacity in the United
States to treat adults with congenital heart disease,
and options to address any shortages in such workforce,
which may include strategies related to fellowship
training programs; and
``(C) foster collaboration and dissemination of
information related to congenital heart disease among
Federal agencies, health care providers, researchers,
patient advocates, and other relevant stakeholders.
``(2) Composition.--The workshop described in paragraph (1)
shall include relevant stakeholders, such as patient advocates,
health care providers, researchers, and health insurance
issuers, and representatives of relevant Federal agencies,
including the Centers for Disease Control and Prevention, the
National Institutes of Health, and the Health Resources and
Services Administration.
``(g) Report.--Not later than 3 years after the date of enactment
of the Congenital Heart Futures Reauthorization Act of 2024, the
Secretary shall issue a report to the Committee on Health, Education,
Labor, and Pensions of the Senate and the Committee on Energy and
Commerce of the House of Representatives on findings and
recommendations of the Secretary with respect to strategies to advance
research related to the needs of individuals of all ages with
congenital heart disease and address workforce shortages of providers
for adults with congenital heart disease, and, as appropriate, a plan
for implementing such strategies, including any progress to date.'';
and
(3) in subsection (i), as so redesignated, by striking
``2020 through 2024'' and inserting ``2025 through 2029''.
Calendar No. 429
118th CONGRESS
2d Session
S. 3757
_______________________________________________________________________
A BILL
To reauthorize the congenital heart disease research, surveillance, and
awareness program of the Centers for Disease Control and Prevention,
and for other purposes.
_______________________________________________________________________
June 18, 2024
Reported with an amendment